Posts

Showing posts from July, 2017

My hidden army

Dearest readers, 
I hope this post finds you well. Having now finished my final piece of coursework for year 1 of my MA (only need to submit hard copy and online) I treated myself to attending a conference at a university in London. The topic was autism and ageing - really relevant for one of the taught modules for next year but also highly under researched with increasing importance. I had only knowledge from my own experience as an autistic person so was looking forward to seeing what research has been carried out to date, what new paths are opening up and what needs to be done. I am also getting used to going to conferences so as to build confidence for the future with potential networking. 
One outcome that was discussed was that of some individuals (myself included in this) having a 'hidden army' supporting us to manage holding everything together - from things including washing and bills to things like problem solving. I am going to blog about my 'hidden army' i…

Equally treasured: story of the autistic loving God

Dearest readers,
I'm going to start a bit differently today. While clearing some papers up in nt room yesterday, I fell across some notes I had made for the youth group when I did an experiential session with them - bringing them into an equal, but different reality I habit in. I had also looked up and sourced some bible verses to give the presentation a Christian grounding. This one jumped out at me:
There is no longer Jew or Greek, there is no longer slave or free, there is no longer make it female; for you are all one in Christ Jesus.
Think it's from Galations - currently on my phone and on a roll so will check later. This jumped out at me for a few reasons. Firstly I don't feel I fit in anywhere at the moment. I've always done my own thing and I've never been one to be part of a tribe or heard. For me, personal reflection is vital. There is only one person I am accountable to (that being God) so I've gone from being an awkward inept youngster to someone wh…

Tied up in knots

Dearest readers, 
I hope this finds you well. I have been very busy this week helping team lead a study over the weekend (finished 9 pm last night) as well as working on my case study and research project for my degree and dealing with a very exhausting scenario on social media which has continued to leave me drained today still. People are so draining and social media is just literally a quagmire of opportunities for misunderstandings and jumping to conclusions. Some may say 'look only at my words', however I must add in, even in my experience as an autistic person, I am very sensitive and do read into things. People confuse me, irrelevant of my diagnosis, and this is all people, including autistic people. It has always frustrated me that I can't give people an HDMI cable and they can't just plug it into my head and I can't plug something into their head. Context is so important - not just body language BUT ALSO background, what has lead up to these things, each …

Why does autism matter though?

Hello dearest readers, 
It's officially more than half way through the year, having finally having reached July. One contact of mine shared a meme with something along the lines of only 24 more Mondays until Christmas in the last week; I have to admit I don't get as excited about Christmas anywhere as much as I used to - I find all the hype so draining and I get so anxious about the major change in routine over the Christmas day and the build up in adrenaline really wears me out - it's the same with birthdays for me now. Minimal fuss is nice as I can stay closer to a more energy-cost-effective neutral where I can enjoy the small things properly. Ten years ago I used to like organising and celebrating but I guess as I've got older I've a) learnt to look after myself but also b) have less capacity for these 'spikes' and would rather focus on Christmas for what it is intended for (celebrating Jesus' birth) rather than getting agitated and get agitated and…